Leslie Russek, Professor Emeritus of Physical Therapy at Clarkson, has been awarded the Outstanding Contribution to EDS (Ehlers-Danlos Society) ECHO Award for her work teaching through the Ehlers-Danlos Society ECHO program. It is a set of programs where EDS expert health care providers lead educational sessions for clinicians. She facilitates the North America Allied Health Provider series. She will formally receive the award at the national conference in August.
The Ehlers-Danlos syndromes (EDS) are a group of hereditary disorders of connective tissue that vary in how they affect the body and their genetic causes. The underlying concern is the abnormal structure or function of collagen and certain allied connective tissue proteins. To find out more about the EDS Project ECHO program, click here: https://www.ehlers-danlos.com/echo/
Russek has also recently completed nearly two years of work for the National Academy of Science, Engineering and Medicine committee for “Selected Heritable Disorders of Connective Tissue and Disability”. This includes a nearly 400-page report that the committee created, which is now publicly available. This is an excellent resource for people with EDS and related connective tissue disorders, as Social Security will be able to use it to better understand disability in this population. To read it, click here: https://nap.nationalacademies.org/read/26431/chapter/1
